The Art of Advocacy
There’s a certain Slant of light,Winter Afternoons –That oppresses, like the HeftOf Cathedral Tunes – Heavenly Hurt, it gives us …
Author Archives: jennie mowbray
The Foolishness of Misplaced Optimism
I was sure I was just being a “drama queen”. After a year of medical stability, I had obviously lost my perspective and was no longer able to distinguish run-of-the-mill muscular pain from a true medical emergency.
The Power of Words
The neurologist’s words reverberated around my brain like a bomb. “You aren’t weak; you are just fatigued. IVIGs don’t make you stronger; they just give you more energy.”
The Art of Lived Experience
Does my sassiness upset you?Why are you beset with gloom?’Cause I walk like I’ve got oil wellsPumping in my living …
Work is Love Made Visible
The years fell quickly away as I walked through the front doors of the emergency department. It felt like only a few weeks had passed.
No Strength to Spare – Measuring Movement in Myositis
My neck felt strangely tired and achy. I had just been for an afternoon walk and was now relaxing, watching the tennis. I struggled to heave myself out of the recliner. As I slowly stood up and stretched, I realised that I was unable to raise my arms over my head. I staggered to the sink for a drink of water, my hips refusing to cooperate by moving.
Beauty for Ashes 