The Power of Words
The neurologist’s words reverberated around my brain like a bomb. “You aren’t weak; you are just fatigued. IVIGs don’t make you stronger; they just give you more energy.”
Author Archives: jennie mowbray
The Art of Lived Experience
Does my sassiness upset you?Why are you beset with gloom?’Cause I walk like I’ve got oil wellsPumping in my living …
Work is Love Made Visible
The years fell quickly away as I walked through the front doors of the emergency department. It felt like only a few weeks had passed.
No Strength to Spare – Measuring Movement in Myositis
My neck felt strangely tired and achy. I had just been for an afternoon walk and was now relaxing, watching the tennis. I struggled to heave myself out of the recliner. As I slowly stood up and stretched, I realised that I was unable to raise my arms over my head. I staggered to the sink for a drink of water, my hips refusing to cooperate by moving.
A Place Not on the Map – Weakness and Pain in Myositis
The first inclination that something nasty was happening in my body was pain – both upper arms and radiating across the top of my chest.
The Hand of God – Reflections on 2025
2025 had started off very well. My muscle weakness from my myositis was well controlled on Myfortic and IVIGs. I was now on a strong anti-fungal to treat Invasive Aspergillosis, as well as Bactrim to treat a possible coexistent Nocardia infection in my lung.
Beauty for Ashes 