The Art of Storytelling
The young woman who sat down next to me chatted away cheerfully with her nurses. The majority of people around me were usually being treated for various cancers and tended to be quiet and subdued.
Category Archives: Myositis
The Art of Being Difficult
My rheumatologist looked at me with a glazed expression, obviously puzzled by my ongoing episodes of my hip joints refusing to move against gravity. My fluctuating weakness pre-immunoglobulins made little sense to him.
Research and Connection – Myositis Discovery Program: August 2025
I wasn’t faced with the daunting prospect of travelling to seven cities in seven days, with seven plane flights to get between them all. I only had a single three-hour car drive, but I held little hope that getting to the Myositis Discovery Program in Brisbane would be logistically possible.
Season of Fatigue: My Love-Hate Relationship with Prednisone
There was nothing neutral about what was happening to my body. My own immune system had advanced a full-frontal attack on its own muscles.
Beauty for Ashes 