A Place Not on the Map – Weakness and Pain in Myositis
The first inclination that something nasty was happening in my body was pain – both upper arms and radiating across the top of my chest.
Author Archives: jennie mowbray
The Hand of God – Reflections on 2025
2025 had started off very well. My muscle weakness from my myositis was well controlled on Myfortic and IVIGs. I was now on a strong anti-fungal to treat Invasive Aspergillosis, as well as Bactrim to treat a possible coexistent Nocardia infection in my lung.
How to be a Patient: The Art of Storytelling
The young woman who sat down next to me chatted away cheerfully with her nurses. The majority of people around me were usually being treated for various cancers and tended to be quiet and subdued.
How to be a Patient: The Art of Being Difficult
My rheumatologist looked at me with a glazed expression, obviously puzzled by my ongoing episodes of my hip joints refusing to move against gravity. My fluctuating weakness pre-immunoglobulins made little sense to him.
Myositis Saga – Part 12: October – Strength
It ended in the same way it had started. Eighteen months before I had randomly bumped into my rheumatologist at my doctor’s surgery.
Myositis Saga – Part 11: September – Facets of my Mind
I was anticipating my upcoming rheumatologist appointment with a mix of fear and trepidation. My General Practitioner and I had made the decision to increase my immunosuppressant dose due to a relapse of my myositis.
Beauty for Ashes 