The Art of Being Difficult
My rheumatologist looked at me with a glazed expression, obviously puzzled by my ongoing episodes of my hip joints refusing to move against gravity. My fluctuating weakness pre-immunoglobulins made little sense to him.
Category Archives: Myositis
Research and Connection – Myositis Discovery Program: August 2025
I wasn’t faced with the daunting prospect of travelling to seven cities in seven days, with seven plane flights to get between them all. I only had a single three-hour car drive, but I held little hope that getting to the Myositis Discovery Program in Brisbane would be logistically possible.
Season of Fatigue: My Love-Hate Relationship with Prednisone
There was nothing neutral about what was happening to my body. My own immune system had advanced a full-frontal attack on its own muscles.
Beauty for Ashes 